[{"innerBlocks":[],"name":"core\/freeform","postId":954,"blockType":{"name":"core\/freeform","keywords":[],"attributes":{"content":{"type":"string","source":"raw"},"lock":{"type":"object"}},"providesContext":[],"usesContext":[],"selectors":[],"supports":{"className":false,"customClassName":false,"reusable":false},"styles":[],"variations":[],"apiVersion":3,"title":"Classic","description":"Use the classic WordPress editor.","category":"text"},"originalContent":"The National Institutes of Health on Monday rolled out a publicly available, interactive tool providing initial data from participants in the Precision Medicine Initiative\u2019s All of Us<\/i> research program.

NIH\u2019s beta version of the Data Browser<\/a> includes a curated set of de-identified information from participants\u2019 surveys, physical measurements and electronic health records.

The online tool is intended for use by participants in the PMI cohort, the general public and the global research community to learn more about the All of Us <\/i>volunteers through the initial summary data.

\u201cOur participants have helped build this program from the ground up, and we\u2019re eager for them to see what they\u2019re contributing to and how their information fits into a larger whole,\u201d said All of Us <\/i>Director Eric Dishman. \u201cWe are grateful to our participants who are generously sharing their health information, as well as giving us feedback on the program as it evolves. Thanks to them, researchers can now see the breadth and depth of data we\u2019ve begun gathering and consider its possibilities for their work.\u201d

Specifically, the new Data Browser is meant to encourage researchers to begin assessing the potential of the participant data for their studies and to start generating hypotheses for their research.

\u201cOur goal is that the Data Browser will help researchers from around the world begin to understand how they will be able to use All of Us<\/i> to discover new insights into the effect of lifestyle, environment, and biology on health and disease,\u201d said Josh Denny, MD, principal investigator of the All of Us <\/i>Data and Research Center and professor of biomedical informatics and medicine at Vanderbilt University Medical Center.

Ultimately, researchers will be able to request access to the data for use in a wide range of studies as the program expands the information in the Data Browser and offers more detailed breakdowns by categories, such as race and ethnicity and gender identity.

\u201cThe resource will grow richer over time as more participants join and we add new data types, from digital health data to whole genome sequences,\u201d added Denny.

The launch of a Researcher Workbench\u2014planned for this winter\u2014will make an initial set of data available for in-depth analysis by researchers, who will be required to register, complete All of Us <\/i>researcher ethics training and sign a data use agreement.

It was exactly a year ago that the All of Us<\/i> research program officially began national enrollment to recruit one million volunteers to contribute their physical, genomic and EHR data for use by researchers looking to measure risk for a range of diseases based on environmental exposures, genetic factors and interactions between the two.

Also See<\/b>: NIH to start national enrollment for PMI cohort on May 6<\/a>

While more than 230,000 participants have begun the process of joining the All of Us<\/i> research program, about 143,000 volunteers have actually completed all of the initial steps of enrollment, including answering the first three surveys, agreeing to share EHRs, having their physical measurements taken, as well as providing blood and urine samples for whole genome sequencing and other analyses.

So far, participants come from all 50 states, and 80 percent represent communities and groups that have been historically underrepresented in biomedical research, according to NIH.

Speaking at an agency symposium on Monday to mark the one-year anniversary of the research program\u2019s national launch, NIH Director Francis Collins, MD, said the PMI cohort will provide \u201ca lot of valuable data for researchers to explore and make those next great discoveries for health.\u201d

Collins added that although All of Us<\/i> has a long way to go before the cohort meets its goal of recruiting one million Americans to contribute their data, the program \u201chas managed to become one of the largest, most diverse research resources in history.\u201d

Dishman told the audience at Monday\u2019s event that NIH is seeking public comments and suggestions on ways to improve the Data Browser. \u201cPlay with this beta version and give us feedback,\u201d he said.","saveContent":"The National Institutes of Health on Monday rolled out a publicly available, interactive tool providing initial data from participants in the Precision Medicine Initiative\u2019s All of Us<\/i> research program.

NIH\u2019s beta version of the Data Browser<\/a> includes a curated set of de-identified information from participants\u2019 surveys, physical measurements and electronic health records.

The online tool is intended for use by participants in the PMI cohort, the general public and the global research community to learn more about the All of Us <\/i>volunteers through the initial summary data.

\u201cOur participants have helped build this program from the ground up, and we\u2019re eager for them to see what they\u2019re contributing to and how their information fits into a larger whole,\u201d said All of Us <\/i>Director Eric Dishman. \u201cWe are grateful to our participants who are generously sharing their health information, as well as giving us feedback on the program as it evolves. Thanks to them, researchers can now see the breadth and depth of data we\u2019ve begun gathering and consider its possibilities for their work.\u201d

Specifically, the new Data Browser is meant to encourage researchers to begin assessing the potential of the participant data for their studies and to start generating hypotheses for their research.

\u201cOur goal is that the Data Browser will help researchers from around the world begin to understand how they will be able to use All of Us<\/i> to discover new insights into the effect of lifestyle, environment, and biology on health and disease,\u201d said Josh Denny, MD, principal investigator of the All of Us <\/i>Data and Research Center and professor of biomedical informatics and medicine at Vanderbilt University Medical Center.

Ultimately, researchers will be able to request access to the data for use in a wide range of studies as the program expands the information in the Data Browser and offers more detailed breakdowns by categories, such as race and ethnicity and gender identity.

\u201cThe resource will grow richer over time as more participants join and we add new data types, from digital health data to whole genome sequences,\u201d added Denny.

The launch of a Researcher Workbench\u2014planned for this winter\u2014will make an initial set of data available for in-depth analysis by researchers, who will be required to register, complete All of Us <\/i>researcher ethics training and sign a data use agreement.

It was exactly a year ago that the All of Us<\/i> research program officially began national enrollment to recruit one million volunteers to contribute their physical, genomic and EHR data for use by researchers looking to measure risk for a range of diseases based on environmental exposures, genetic factors and interactions between the two.

Also See<\/b>: NIH to start national enrollment for PMI cohort on May 6<\/a>

While more than 230,000 participants have begun the process of joining the All of Us<\/i> research program, about 143,000 volunteers have actually completed all of the initial steps of enrollment, including answering the first three surveys, agreeing to share EHRs, having their physical measurements taken, as well as providing blood and urine samples for whole genome sequencing and other analyses.

So far, participants come from all 50 states, and 80 percent represent communities and groups that have been historically underrepresented in biomedical research, according to NIH.

Speaking at an agency symposium on Monday to mark the one-year anniversary of the research program\u2019s national launch, NIH Director Francis Collins, MD, said the PMI cohort will provide \u201ca lot of valuable data for researchers to explore and make those next great discoveries for health.\u201d

Collins added that although All of Us<\/i> has a long way to go before the cohort meets its goal of recruiting one million Americans to contribute their data, the program \u201chas managed to become one of the largest, most diverse research resources in history.\u201d

Dishman told the audience at Monday\u2019s event that NIH is seeking public comments and suggestions on ways to improve the Data Browser. \u201cPlay with this beta version and give us feedback,\u201d he said.","order":0,"get_parent":{},"attributes":[],"attributesType":{"content":{"type":"string","source":"raw"},"lock":{"type":"object"}},"dynamicContent":""}]

NIH launches beta version of Data Browser for PMI cohort

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